Metro DC EDS and HSD Support Group is open to people with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) in Northern Virginia, suburban Maryland, and Washington, DC as well as to their family, friends, caregivers, and practitioners.  We believe in being as inclusive as possible and welcome people from the broader DMV area – and have members from Baltimore to Richmond to Winchester to Pennsylvania.  We also welcome collaboration with other support groups!  We are always looking to see new faces!

The group has grown to over 650 people since its first meeting on January 12, 2013, which had 8 attendees.  Our goal is to encourage ongoing sharing and support among members, learn more about EDS, HSD, and related conditions from each other and medical professionals, and help others better understand EDS and HSD and our lives as “Zebras.”

Since the pandemic we have been having Zoom meetings, which include guest speakers and/or a general discussion.  We will resume our quarterly meetings, which rotate between Washington, DC and Northern Virginia at metro-accessible locations, in September 2026.  Meetings will be announced on this site, by email, and on our Facebook page.  Between meetings, we stay connected and engaged through our email list, Discord (metro.dc.eds.hsd.sg), Facebook, and social events.  To join our email list, please contact us at eds@eds-dc.org.  In the meantime, also check out our youtube channel @metrodceds.